Infantile Spasms is a rare and severe form of epilepsy in infants. Early recognition and treatment can make a life-changing difference.
Whether you’re a parent, caregiver, or medical provider, ISAN is here to guide, support, and empower you with
trusted resources.
Clinical criteria, treatment guidelines, and research.
The Infantile Spasms Action Network (ISAN) is a powerful coalition of advocacy groups, medical experts, and passionate families working side by side to raise awareness, drive early diagnosis, and improve lifelong outcomes for children impacted by infantile spasms.
Through education, collaboration, and support, we’re committed to making every day count.
Watch how early detection changed the lives of these families.
Our coalition includes leading institutions and advocates in pediatric neurology and epilepsy care.
We’re here for every family—wherever you are and whatever language you speak. Access trusted information, guidance, and support in Spanish, with more language options coming soon to better serve our diverse community.
Your voice, your support, and your awareness can make all the difference for a child facing infantile spasms. Help us spread the word and save more lives—starting today.
