Yes, it is IS (Now What?)

Resources

• Organization for Rare Diseases India (ORDI)
  • ORDI’s mission is to be the strong united voice for all rare diseases in India, to reduce inequalities and ensure that people living with rare diseases have access to the same resources as any other population. Learn More >
• Child Neurology Foundation Peer Support Program
• Danny Did Foundation
• SUDEP & seizure device information UKIST
• Support for parents living in the UK FundHemi
• Support for those living in Brussels KinderEpilepsie
• Facebook Online Support Groups
  • The Infantile Spasms Community Discussion Group
  • Infantile Spasms Support Group 
  • Infantile Spasms 
• UK Online Support Group