For Families
Compassionate guidance for families navigating infantile spasms
Is It Infantile Spasms?
Infantile spasms are seizures caused by abnormal brain activity and may seem subtle at first. They often appear as repetitive movements such as:
- Jerking or crunching of the body
- Sudden head drops
- Arms flinging upward
- Wide-eyed blinking
Because they mimic colic, reflux, or a startle reflex, infantile spasms are often misdiagnosed. But unlike those conditions, IS is a medical emergency that requires immediate attention.
What Do Infantile Spasms Look Like?
Infantile spasms don’t always look alarming. They may be dismissed as harmless twitching or quirky baby movements. But recognizing the pattern is critical:
- Spasms often come in clusters, especially after waking or feeding
- Movements are sudden, repetitive, and short-lived
- Babies may seem momentarily startled, then resume activity
Early recognition and prompt medical evaluation are vital for a child’s best developmental outcome.
Yes, It Is Infantile Spasms. (Now What?)
If your child has been diagnosed, know that you are not alone. There are clear steps and resources to help you navigate treatment and support:
- Learn about evidence-based treatments
- Connect with medical specialists
- Access family support networks and community groups
Getting the right care early can make a life-changing difference.
Real Stories. Real Impact.
Your voice, your support, and your awareness can make all the difference for a child facing infantile spasms. Help us spread the word and save more lives—starting today.
