Is It Infantile Spasms?
Infantile spasms are a rare but urgent form of epilepsy in infants under one year. Early recognition and diagnosis can stay developmental harm—learn what to look for, when to seek care, and why timing matters.
What Are Infantile Spasms?
Infantile spasms—also known medically as West syndrome or infantile epileptic spasms syndrome—are clusters of brief seizures in infants under 12 months. Each spasm lasts around one second and is often followed by a pause in normal behavior. These spasms can harm rapidly developing brains if not treated promptly
Recognizing the Signs
Subtle movements can hide a serious condition—knowing what to look for could save valuable time.
Spasm Clusters
Quick movements—like head drops, arm raises, or wide-eyed stares—repeated every few seconds and recurring for several minutes.
Developmental Changes
Suddenly losing milestones—such as babbling, sitting, or visual tracking—is common.
EEG Pattern (Hypsarrhythmia)
Clinical criteria, treatment guidelines, and research.
Real Stories. Real Impact.
Watch how early detection changed the lives of these families.
What Causes Infantile Spasms?
- Brain structure problems present at birth or acquired injuries.
- Genetic conditions—like tuberous sclerosis, CDKL5, or Dup15q syndromes.
- Other diagnoses like Down syndrome or brain malformation, though some cases have no known cause (cryptogenic).
Why Speed Is Critical
- Prompt treatment increases the chance of normal development and better outcomes—especially in cases without an underlying brain disorder.
- Use the mnemonic “STOP Infantile Spasms”:
- See the signs
- Take a video
- Obtain an EEG diagnosis
- Prioritize treatment
What To Do Next
If you suspect infantile spasms, every minute matters—follow these steps to get help fast.
01
Record
Take a video of the movements.
02
Act Quickly
Contact pediatrician or ER. Mention concern about infantile spasms.
03
Ask for EEG
Request evaluation even if you’re unsure.
04
Seek Specialists
Only a neurologist can guide the right treatment path.
05
Stay Informed
Use ISAN resources and support networks.
You Are Not Alone
Families around the world are facing the same challenges—connect with others, find trusted guidance, and discover the support you need to move forward.
- Peer support programs (Child Neurology Foundation)
- Grants like Mickies Miracles and Harnett & Rise Family Grants
- Online support groups and international networks
- ISAN multilingual resources and awareness campaigns during ISAW
Real Stories. Real Impact.
Your voice, your support, and your awareness can make all the difference for a child facing infantile spasms. Help us spread the word and save more lives—starting today.
