Yes, It Is IS. Now What?
You’ve recognized the signs.
Now let’s move forward together—with understanding, resources, and support at every step.
Take a Deep Breath. You’re Not Alone.
Knowing your child has infantile spasms can feel overwhelming—but you’re not in this alone. ISAN connects you to trusted support networks, financial assistance, and resources tailored to your family’s needs and location.
Support That Reaches Far and Wide
Whether local or international, peer-led groups and nonprofit organizations are ready to offer connection, guidance, and compassion.
Child Neurology Foundation – Peer Support Program
Supporting rare disease families across India with advocacy and resources.
Facebook Support Groups
Join global communities like:
• The Infantile Spasms Community Discussion Group
• Infantile Spasms Support Group
• Infantile Spasms (general community)
Financial Aid & Grants
There are programs specifically designed to ease the emotional and financial burden of caregiving.
Organization for Rare Diseases India (ORDI)
Supporting rare disease families across India with advocacy and resources.
Reach Out, Share, Stay Informed
From local meetups to social media groups, joining others in this journey brings clarity and camaraderie. Awareness events like Infantile Spasms Awareness Week (ISAW) offer education and connection opportunities.
Take Action. Change a Life.
Your voice, your support, and your awareness can make all the difference for a child facing infantile spasms. Help us spread the word and save more lives—starting today.
