A global movement led by the Infantile Spasms Action Network (ISAN) to raise awareness, promote early diagnosis, and ensure every child gets the urgent care they need.
Every December 1–7, healthcare professionals, families, and advocacy groups come together for Infantile Spasms Awareness Week (ISAW) to shine a spotlight on this urgent medical condition. Spearheaded by the Infantile Spasms Action Network (ISAN)—a coalition of over 30 organizations—ISAW raises awareness and encourages swift diagnosis and treatment.
Infantile spasms are not just another baby symptom—they’re a medical emergency. These subtle but serious seizures can appear as:
Una manera sencilla de recordar qué hacer cuando sospechas de Espasmos Infantiles
Take a video of the movements.
Contact pediatrician or ER. Mention concern about infantile spasms.
Request evaluation even if you’re unsure.
Only a neurologist can guide the right treatment path.
Simple actions that spread awareness and save lives
Share ISAW messages using hashtag #ISAW2025 (or the current year) to amplify awareness.
Download and share the ISAW Partner Toolkit—it includes graphics, social posts, and educational resources tailored for families and providers
Infantile Spasms Action Network.
If you suspect infantile spasms, don’t wait—record, consult your doctor, press for an EEG, and help get treatment started.
Your voice, your support, and your awareness can make all the difference for a child facing infantile spasms. Help us spread the word and save more lives—starting today.
