Together we can STOP
Infantile Spasms
Infantile Spasms:
A Medical Emergency
Infantile spasms (IS) are a severe type of seizure that may appear as small or subtle movements but require immediate medical attention:
- Repeated sudden movements such as:
– Body jerks or crunching forward
– Head dropping
– Arms flinging upward with wide eyes - Often mistaken for colic, reflux, or a startle reflex
- Every minute matters: fast diagnosis and treatment can help prevent long-term neurological harm
Recognize the Signs with STOP
If you suspect infantile spasms, every minute matters—follow these steps to get help fast.
S
See the signs
Look for repeated, uncontrolled movements — such as head drops, body crunching, or sudden staring.
T
Take a video
Record the episode on video and share it with your doctor. Visual evidence is extremely valuable for diagnosis.
O
Obtain a diagnosis
An EEG (electroencephalogram) is required to confirm abnormal brain wave activity.
P
Prioritize treatment
Start treatment as soon as possible to reduce the risk of severe developmental delays.
Why Does Every Second Count?
Early action can change a child’s future:
- ISAW has reached more than 195 million people worldwide through coordinated awareness efforts.
- ISAN is made up of dozens of international organizations with a single mission: to stop infantile spasms.
- Early detection and immediate treatment significantly improve long-term outcomes.
How You Can Help
Small actions make a big difference in raising awareness
- Share ISAW's key messages on social media using the hashtag #ISAW2025.
- Download the Awareness Kit and share reliable information with families and caregivers.
Real Stories. Real Impact.
Your voice, your support, and your awareness can make all the difference for a child facing infantile spasms. Help us spread the word and save more lives—starting today.
