Together we can STOP
Infantile Spasms
What is ISAW? Each year, from December 1–7, the Infantile Spasms Awareness Week (ISAW) is observed, led by the Infantile Spasms Action Network (ISAN). The goal is to educate families and healthcare providers about the urgent need for early diagnosis and treatment of infantile spasms.
Infantile Spasms:
A Medical Emergency
Infantile spasms (IS) are a severe type of seizure that may appear as small or subtle movements but require immediate medical attention:
- Repeated sudden movements such as:
– Body jerks or crunching forward
– Head dropping
– Arms flinging upward with wide eyes - Often mistaken for colic, reflux, or a startle reflex
- Every minute matters: fast diagnosis and treatment can help prevent long-term neurological harm
Recognize the Signs with STOP
If you suspect infantile spasms, every minute matters—follow these steps to get help fast.
S
See the signs
Look for repeated, uncontrolled movements — such as head drops, body crunching, or sudden staring.
T
Take a video
Record the episode on video and share it with your doctor. Visual evidence is extremely valuable for diagnosis.
O
Obtain a diagnosis
An EEG (electroencephalogram) is required to confirm abnormal brain wave activity.
P
Prioritize treatment
Start treatment as soon as possible to reduce the risk of severe developmental delays.
Why Does Every Second Count?
Early action can change a child’s future:
- ISAW has reached more than 195 million people worldwide through coordinated awareness efforts.
- ISAN is made up of dozens of international organizations with a single mission: to stop infantile spasms.
- Early detection and immediate treatment significantly improve long-term outcomes.
How You Can Help
Small actions make a big difference in raising awareness
- Share ISAW's key messages on social media using the hashtag #ISAW2025.
- Download the Awareness Kit and share reliable information with families and caregivers.
Real Stories. Real Impact.
Your voice, your support, and your awareness can make all the difference for a child facing infantile spasms. Help us spread the word and save more lives—starting today.
