In the News

Stay informed with the latest coverage, stories, and research about Infantile Spasms

Check out some of our partners’ posts during ISAW 2025!

Dr. Melanie McNally explains how to recognize infantile spasms and what to do about this medical emergency

Dr. Christina Briscoe discusses new multi-center findings on current treatment practices for infantile epileptic spasms syndrome

Read a co-authored guest blog post for the NORD website in honor of Infantile Spasms Awareness Week (iSAW), December 1–7.

Read an updated newsletter from ISAN following our in-person workshop

Watching your baby’s movements is usually a source of joy—but when subtle signs point to a serious neurological condition like infantile spasms (IS), concern can creep in quickly. Learn what symptoms to watch for and next steps.

In addition to being a self-described ‘medical mama’ to her daughter Lennon, Althea Grace was a Top 40 contestant on ABC’s American Idol and continues to work as a recording and touring artist, singer, songwriter, guitarist, and bassist.

This week on Seizing Life®, we focus on infantile spasms (IS), a rare and particularly severe epilepsy syndrome that typically begins within the first year of life.

In Part 1 of “The TSC Navigator: A New Resource to Guide Families through the TSC Journey,” I sat

Infantile spasms are a medical emergency! Symptoms can be subtle, and quick diagnosis and treatment are essential for preventing lifelong consequences. This week, we raise awareness and explore the details of this serious type of seizure. We hope you can join us!

In Part 1 of “The TSC Navigator: A New Resource to Guide Families through the TSC Journey,” I sat d

According to my parents, at six months old I had a grand mal seizure. I was in my grandmother’s arms

“I have accomplished so many things since being on ‘Idol,’ but nothing comes close to the joy it brin

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