Infantile Spasms Awareness Week (ISAW) 


This Infantile Spasms Awareness Week (ISAW), healthcare providers are reminded they are on the front lines for combatting this condition.

They control the speed in which infantile spasms are detected – an important factor in how effectively they can be treated.

Infantile spasms can be difficult to spot. PCPs must understand the “red flag”  words alerting to the possibility of infantile spasms when caregivers are describing symptoms, including small crunches, head drops, head bobs, and uncontrolled movements.  

Neurologists must begin treatment within the first seven days of an infantile spasms diagnosis to have the best chance to prevent long-lasting symptoms. Physicians should maintain a low threshold of suspicion when considering if a child could have infantile spasms.

If you suspect infantile spasms, refer the child to an urgent visit in front of a neurologist and order an EEG immediately. Do not hesitate to refer to a neurologist, even if you are unsure of a definitive diagnosis.

The faster a child is diagnosed and treated for infantile spasms, the less the potential for long-term neurological effects. 

ISAW mnemonic Facebook post 1

See the signsClusters of sudden, repeated, uncontrolled movements like head bobs or body crunching.

Take a videoRecord the symptoms and talk to your doctor immediately.

Obtain diagnosisConfirm an irregular brain wave pattern with an EEG test.

Prioritize treatmentEnd spasms to minimize developmental delays




We’re raising awareness about Infantile Spasms in hopes of a brighter future. Awareness leads to opportunity!

ISAN looks forward to more engaging awareness efforts this year! Help us spread the word! The messaging below can be shared on social media or in other partner communication networks. Please use this site and #ISAW2024.



Infantile Spasms Action Network

In 2015, the Child Neurology Foundation and the TSC Alliance® partnered to lead a multi-year infantile spasms (IS) awareness and education initiative, focused on promoting an annual Infantile Spasms Awareness Week from December 1 to 7. Today, ISAN has grown into a collaborative network of more than 30 national and international entities focused on raising awareness about infantile spasms. Each year during IS Awareness Week, ISAN members join together to educate the general public and first-line medical providers about the importance of prompt and early diagnosis of the disorder

Questions about ISAN? Want your organization/company to get involved?

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