This ISAW, healthcare providers are reminded they are on the front lines for combatting this condition.
They control the speed in which infantile spasms are detected –
an important factor in how effectively they can be treated.
Infantile Spasms:
A Medical Emergency
Infantile spasms can be difficult to spot. PCPs must understand the “red flag” words alerting to the possibility of infantile spasms when caregivers are describing symptoms, including small crunches, head drops, head bobs, and uncontrolled movements.
Neurologists must begin treatment within the first seven days of an infantile spasms diagnosis to have the best chance to prevent long-lasting symptoms. Physicians should maintain a low threshold of suspicion when considering if a child could have infantile spasms.
If you suspect infantile spasms, refer the child to an urgent visit in front of a neurologist and order an EEG immediately. Do not hesitate to refer to a neurologist, even if you are unsure of a definitive diagnosis.
The faster a child is diagnosed and treated for infantile spasms, the less the potential for long-term neurological effects.
Recognize the Signs with STOP
If you suspect infantile spasms, every minute matters—follow these steps to get help fast.
S
See the signs
Look for repeated, uncontrolled movements — such as head drops, body crunching, or sudden staring.
T
Take a video
Record the episode on video and share it with your doctor. Visual evidence is extremely valuable for diagnosis.
O
Obtain a diagnosis
An EEG (electroencephalogram) is required to confirm abnormal brain wave activity.
P
Prioritize treatment
Start treatment as soon as possible to reduce the risk of severe developmental delays.
Why Does Every Second Count?
Early action can change a child’s future:
- ISAW has reached more than 195 million people worldwide through coordinated awareness efforts.
- ISAN is made up of dozens of international organizations with a single mission: to stop infantile spasms.
- Early detection and immediate treatment significantly improve long-term outcomes.
How You Can Help
Small actions make a big difference in raising awareness
- Share ISAW's key messages on social media using the hashtag #ISAW2025.
- Download the Awareness Kit and share reliable information with families and caregivers.
Real Stories. Real Impact.
Your voice, your support, and your awareness can make all the difference for a child facing infantile spasms. Help us spread the word and save more lives—starting today.
