Research and Publications

Research is critical. Research about infantile spasms is gaining momentum.

Some researchers believe that by identifying abnormal brain activity prior to the onset of seizures, we’ll be able to intervene earlier and prevent infantile spasms or other types of seizures.

Clinical Trials Opportunities:

Stopping TSC Onset and Progression 2B: Sirolimus TSC Epilepsy Prevention Study

Complete List of Infantile Spasms Recruiting Studies

Published Research on Infantile Spasms:  

https://search.nih.gov/search?affiliate=nih&query=Infantile+Spasms

Other information sources about Infantile Spasms:

https://kidshealth.org/en/parents/infantile-spasms.html

https://www.ninds.nih.gov/Disorders/All-Disorders/Infantile-Spasms-Information-Page

Choosing to participate in a clinical trial is an important personal decision.  It is often helpful to talk to a physician, family members, or friends about deciding to participate in a clinical trial.