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Is it Infantile Spasms?
What can Infantile Spasms look like?
Yes, It Is IS. Now What?
Para Familias
¿Son espasmos infantiles?
¿Cómo se presentan los espasmos infantiles?
Sí, ¡Son espasmos infantiles! ¿Ahora qué?
ISAW
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Treatment
Infantile Spasms Awareness Week for Providers
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Infantile Spasms Awareness Week
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Families
Is it Infantile Spasms?
What can Infantile Spasms look like?
Yes, It Is IS. Now What?
Para Familias
¿Son espasmos infantiles?
¿Cómo se presentan los espasmos infantiles?
Sí, ¡Son espasmos infantiles! ¿Ahora qué?
ISAW
Physicians/Providers
Treatment
Infantile Spasms Awareness Week for Providers
Research and Publications
About Us
Get Involved
Infantile Spasms Awareness Week
Our Sponsors
In the News
Donate
Subscribe
Please take 2 minutes to complete our survey on infantile spasms!
Name
Email Address
What is your connection to infantile spasms?
Caregiver
Medical Professional
Other
Does your loved one have a co-occurring diagnosis? If so, what is it?
How many months old was your loved one when they first experienced symptoms?
How many weeks did it take to receive a diagnosis and start treatments?
When your loved one was first diagnosed with infantile spasms, what treatment was used first to treat the spasms?
Hormonal Treatment (ACTH or corticosteroids, such as prednisolone)
Vigabatrin (Sabril)
Both hormonal treatment and vigabatrin started together
Other (please specify)
How many treatment combinations were needed to manage symptoms?
1
2
3
4 or more
Had you heard of infantile spasms before seeing symptoms?
Yes
No
Where do you work?
Does your workplace have a plan in place to promote infantile spasms awareness?
How did you find the ISAN website?
Would you be interested in getting involved with ISAN or promoting awareness?
Yes
Not right now
Submit
